Oh now, how funny is that, I thought I should write a quick health update and wondered how long it had been since my last one. Popped over to check and it’s a month to the day, talk about timing. I have some more information regarding my neuro stuff, and after the photo is some information about the new condition that may have come to light (I kid you not).
If you read my last health post, here, you’ll know I was facing a difficult fork in the road in which I may’ve had a health issue which was scary but treatable or one which is a little less scary but not treatable. Well I got my blood test results which told me it was the second of the two, still scary but not potentially fatal, but no tablets to help.
How do I feel about that? Pretty numb right now, to be honest. I am seeing my neurologist in a few weeks and I will be running through things with him. I’ve been informed that it’s possible to still have the former condition, with negative blood tests, so I may see what his thoughts are on further testing (it involves needles and electric currents and anyone who knows me knows needles are a big big phobia of mine but if it helps get this all cleared up then I’ll do it). So I think I probably have my answer, but I’m going to hold off from explaining more as there’s still a chance there’s more to go before confirming for sure.
|Flower as a filler, isn’t it pretty!|
So, anyway, yes, I got my blood test results which said I didn’t have one of the two neurological conditions. But the tests did show inflammation in my blood which may just have been some sort of infection (even just a mildly infected cut on my hand). A few weeks later, though, I developed a rash, on my face, in the shape of a butterfly. Anyone who knows anything about chronic health knows that that can signify the autoimmune disease, Lupus. I have a whole list of other symptoms which would tally with Lupus, and it would also explain inflammation in my blood.
Hopefully it’s just a random rash, but I saw a locum gp who was absolutely fantastic (she really listened, she was ever so caring and really wanted to help) and she said that she thinks it is Lupus too. So, guess what? Yup, waiting for more blood test results!
I am already seeing a rheumatologist in November to discuss some other things so, if blood tests do indicate an autoimmune disease then, hopefully, that appointment can be brought sooner or, if not, I can discuss this with them then. They’re going to love me, haha, I already had two things to discuss and now maybe one more.
So yes. Neuro stuff is partially answered, but also maybe not. For now I am accepting that it’s FND but going to nudge for the chance of the further testing, just to put my mind at rest, regarding the MG. And now we’re on to the territory of autoimmune diseases. Hopefully my rash is random and my new symptoms could be explained by one of my original conditions but, for now, it’s more of the waiting game.
Sorry, bit of a non-update, but another explanation as to why I’m a bit here and there and all over the place at the moment, It’s hard to get any real focus when your mind is taken up by all of these maybe’s, by things that could potentially be life changing or could be nothing at all (the neurological stuff is definitely something, but the autoimmune could still not be).
I really appreciate the understanding of the friends that I’m a bit absent with. I appreciate the understanding of the companies that I’ve been trialling products for. And I appreciate all the lovely supportive comments from people, both longer standing friends and readers who I’ve not come across before.