A slightly different gift guide today! I was asked to trial some products which really lent themselves to Spoonies (Meaning the chronically ill – See Spoon Theory) this Christmas so I decided to build a whole gift guide around them and make it a self care gift guide. That doesn’t mean that this guide is only for the chronically ill, though, this is a list of gift ideas for anyone in your life who needs to rest, to take it easy. Maybe it is someone who’s ill, or maybe someone who works too hard or just doesn’t know when to look after themselves – This Christmas you can give them some products to help them take the hint, to get them to slow down and put themself first.

I’ve split the guide, loosely, in to categories – I’ve got creams and other things which should help more physically, things to boost the mood, then comfort items and, finally, entertainment. So if you’re here for just one of those categories you’ll see them as you keep scrolling.

If you are a Spoonie then make sure you share this with your friends and family so they have some hints and tips for what to get you this year – Some of these are a bit obvious, but, not all of them are. I had a good time trying to think of things that could really help people this Christmas.

As with my previous gift guide I’ll mark any products that were sent to me with a *, anything else I bought myself.  And if you’re looking for a more standard Gift Guide then check out my previous post which contains a huge range of ideas for lots of types of people.

Melty Talented balm from Soap and Glory - Self Care Gift guide

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Today I am having an ‘I’m going to get better day’. It’s been over seven years since my fibromyalgia diagnosis, since I realised I wasn’t going to have everything from life that I hoped, I am a long way down the path of learning to cope, but I don’t believe it’s a path that’ll ever end and that’s fine.

Since that first diagnosis my fibromyalgia has become a lot worse, I’ve developed any number of new conditions (more on that soon as there’s been some progress with working out what) and life has become harder than it was when I was diagnosed. And, of course, so has coping.

There’s a lot of ways to cope with a diagnosis of something chronic and a lot, for me, revolves around acceptance, about understanding your new limitations and learning to look forward to the new things your life has to offer. But some days you seem to forget that acceptance (and I know I’m not alone in this). Some days you decide you’re going to get better one day and you think about how your life will be when you do.

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If you’re a regular reader you’ll be aware that my health has been somewhat of a nightmare for a long time now. You’ll also have noticed that my posting has become even more sporadic than it has been in a long time. You wouldn’t be wrong to assume that these two things are linked.

My last health update was quite a hopeful one, not hopeful in terms of not being ill, that boat has sailed, but in terms of finding out answers, I didn’t have any yet, but I really thought I was close to understanding what was going on, I was wrong. If you’d like to see that post, to further understand the back story, you can find it here.

I’m going to try to keep this as, relatively, brief as I can but it’s long which, I appreciate can make it hard to read, but I promise it makes it a bit rubbish to live through too. I’ve put a super quick summary at the end but for more detail keep reading.

My new ‘Health Folder’ as a way to get everything in order and take back some control of how all over the place everything is

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I realised that I haven’t done a health update in a little while so I thought I’d write a post to let you all know where I am – I won’t go in to too much back story, if you want to know what’s got me up to this point then you can see my previous posts, there’s one from August 2016 here, and one from September 2016, here. The post may get a bit long so I’ll write a quick conclusion towards the end just so that, if you don’t have long, you can hop down there and get a simpler version.

Since last seeing my Neurologist I have had nerve testing to, finally, rule out Myasthaenia Gravis and I was pleased to discover that they were clear, so I don’t have that. Previously ruling out MG meant that my neuro felt that it was Functional Neurological Disorder but he’s not as sure, now, and wants me to see whether or not my Rheumatologist believes there could neurological complications with what I potentially have there. I’m not sure if I’m going to be signed off from my neuro, but for  now I’m not seeing him but if the rheumy stuff doesn’t bring answers then I’ll go back and ask again.

Regardless of what’s happening – There’s good things in life

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This is quite an unusual sort of post, for me, but an undoubtedly interesting one. As a sufferer of a number of chronic health conditions anything health related is intriguing and the idea of kits that test you from home are something that really caught my attention.

I was asked if I’d like to trial an Osentia home testing kit, which tests you for your risk of fragility fractures, a strong sign of osteoporosis. I’m not, as it happens, in the high risk category for osteoporosis; people’s bones begin to weaken in their mid 30’s and then risk increases as women reach the menopause. As such I was pretty sure that my test would give me the all clear, but considering there are so many things wrong with my body at the moment I thought it was a good chance in which to rule something else out!
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